Newborn

What lab testing should I request from my child’s physician? In the US, your child’s physician is likely to be following these conservative 2011 guidelines for “health supervision” of Down syndrome. Some physicians don’t even do that much, so if your child hasn’t had all of the tests listed, it’s easy to request them. These

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Learn how to optimize the health and well being of individuals with Down syndrome… Overview Action Plan for Parents of Children with Down Syndrome Slides: Action Plan for Parents of Children with Down Syndrome With proper intervention—physical, nutritional, neurodevelopmental, medicinal and environmental—your child’s future can be full of… ♥ Hi friend! Please login to view

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Neurodevelopmental Therapy

What is Neurodevelopmental Therapy? NDT, neurodevelopmental therapy, is an all-inclusive program. I’d start this as soon as possible or after integrating the reflexes with the QRI Laser Home Program for at least six months. NDT addresses all the senses, so it includes speech, gross/fine motor, cognitive support, educational strategies, nutriti… ♥ Hi friend! Please login

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By Carol Royer My daughter, Greta, was born five weeks early with a heart condition called tetralogy of fallot. We also found out that she has a Robertsonian translocation of the 21st chromosome, which is an unusual form of Down syndrome. After her birth, she was transferred to Nemours DuPont Children’s Hospital in Wilmington, Delaware.

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Unfortunately, constipation is no laughing matter and it has caused me no end of worry. (Hence the lovely text messages to my hubby while he’s at work.) For some reason, I gauge my success as a mom on the details of Jett’s BMs! But, since he turned four years old, I finally figured it out! So

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What’s the best first shoe for your baby? Well, going barefoot is best since it provides the best grip, and therefore stability, on the floor as well as tactile stimulation while walking, but it’s not always practical or socially acceptable. So you want to find the shoe that mimics bare feet as closely as possible.

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Finding physicians to properly treat your child will be one of the most important tasks you’ll need to tackle. But where do you start? Traditionally, we’ve been brought up to trust and revere doctors. But the more I learn about Down syndrome and the more doctors I talk to about it, the more I realize

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Alphabet Tactile Quilt

Yesterday, Jett got quite a treat! His grandmother gave him an alphabet tactile quilt that she designed and had been making for him for three years.We spread it out on the floor and Jett went crazy with delight as he explored all the colorful ABC squares. The letters are made of rickrack so they are

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What is Nystagmus? Nystagmus is an involuntary “flutter” or movement of the eyes (like the actor in “The Crying Game”). Seventeen percent of people with Down syndrome have nystagmus (Neuroimaging Findings in Patients With Down Syndrome and Nystagmus. Wong, 2016), while it appears in about .015 percent in the typical pediatric population, usually o… ♥

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3 year old Jett and Mommy’s growing tummy As for prenatal supplementation, there’s a lot you can do and need to do as a mom carrying a baby with Down syndrome (referred to as “you” “us” or “we”). I wrote this while six months pregnant with my second child and acted as if the baby

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