Caregiver Support

Goji Berries

Goji Berries I first learned about goji berries from Kristen Morrison’s book, Naturally Better Kids. She believes that they have been beneficial to her son with T21, Gryffin. They are expensive, but are delicious and most importantly, full of quite an impressive list of health benefits. Fortunately, Jett loves them. He enjoys the frozen, organic

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Breastfeeding a Baby With Down Syndrome Breastfeeding was our first hurdle. I recommend reading lots of books about it first. My favorite is So that’s what they’re for: Breastfeeding Basics. I always wondered why a book would be 300 pages about the importance of breastfeeding. Now I understand that it’s necessary because breastfeeding is not

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How to Prevent DS in Your Next Child in 60% of Moms Abnormal Folate and Methyl Metabolism can Lead to DNA Hypomethylation and Abnormal Chromosomal Segregation Increasing the Risk for Having a Baby with Down Syndrome Abnormal Folate Metabolism and Mutation in Methylenetetrahydrofolate Reductase Gene May Be Maternal Risk Factors for Down S… ♥ Hi

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Thyroid & Down Syndrome Go Hand in Hand The symptoms of low thyroid hormone are very similar to characteristics of DS. They include (but aren’t limited to) slow growth, delayed development, (the appearance of) an enlarged tongue, low muscle tone, dry skin and constipation.   Since it is hypothesized that most everyone with Down synd…

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EGCG Green Tea Extract For Memory I had been giving Jett green tea extract for a while and didn’t see any change. Turns out, I had missed the fact that the dosage on the bottle was for TWO capsules. So, I was only giving him a half a dose for the longest time (5mg/per kg)

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Longvida Curcumin

Longvida Curcumin Longvida Curcumin is one of my favorite supplements that Jett takes (as well as the whole family). I saw positive results in Jett very quickly — in fact, at 8 months old, he said his first meaningful word: “water,” four days after starting LC!   Other parents have also reported significant improvements in

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Learn how to optimize the health and well being of individuals with Down syndrome… Overview Action Plan for Parents of Children with Down Syndrome Slides: Action Plan for Parents of Children with Down Syndrome With proper intervention—physical, nutritional, neurodevelopmental, medicinal and environmental—your child’s future can be full of… ♥ Hi friend! Please login to view

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What is Nystagmus? Nystagmus is an involuntary “flutter” or movement of the eyes (like the actor in “The Crying Game”). Seventeen percent of people with Down syndrome have nystagmus (Neuroimaging Findings in Patients With Down Syndrome and Nystagmus. Wong, 2016), while it appears in about .015 percent in the typical pediatric population, usually o… ♥

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3 year old Jett and Mommy’s growing tummy As for prenatal supplementation, there’s a lot you can do and need to do as a mom carrying a baby with Down syndrome (referred to as “you” “us” or “we”). I wrote this while six months pregnant with my second child and acted as if the baby

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When your child does something that makes you furious, first, try to understand the context in which the negative behavior took place. For instance, when Jett used to throw his plate across the room after eating — which would make me insane — it was much easier for me to control my anger once I

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