Hi! I am so amped that I've forgotten to double check what your name is as I write this. Our little Tyler is T21 and is sneaking up on 12 week old. I'm so completely grateful for the exhaustive work which you've put into your blog. While it is overwhelmingly dense with content, I feel like I've got just about the most awesome shortcut on what steps to take next. I'm just in the middle of your 'getting started' entry and have devoured your posts on green tea supplementation.
Thank you. Thank you. Thank you.
Oh my God!!! I'm moved to tears that you replied...thank you soooo much Andi. I'm grateful...Thank you again... I pray you continue to find strength and motivation to touch more lives of DS kids around the world. Have a great day.
Andi, Another awesome post again...very timely. Thanks for addressing the post for the parents controlling their anger. That's my biggest issue now, must address.
I found your website 2 months ago when my little girl was 6 months old. I can’t even begin to tell you how much it changed our family. I have always had a feeling there had to be something we could be doing to change what I was told would be a pretty dismal outcome for my little Isla. I had looked for some information online off and on but really only found the “bleak” info until I happened to Google search the correct words which led me to your blog. I can honestly say on that day everything changed for me, not one person had mentioned there was anything that we could do to help Isla and there was! Thank you for all your hard work and time and effort because it has and will change my little girl's life.
My little girl is already showing such progress, it is so inspiring. Please know you have made a difference and what you are doing is changing lives. Thank you.
I honestly can't thank you enough for all you do and have done. I try to get a quick peek at the website at least once a day and feel like I've barely skimmed the surface. We referred to many mainstream webpages for information and while it was informative, it was scary. Coming across your page was a complete game changer for my life! ...I have so much hope for the future, thanks to you!! ...
I also saw that you offer private phone consultations. Once I wrap my head around this a little bit more and get some questions lined up, I will be setting up a phone consultation with you here in the near future. Looking forward to talking with you!
All the best to you and yours,
Seriously… your site is just amazing. I am reading everything and am so amazed by your research and the wonderful way you share all this information with us. Your site is a treasure. Really. It is water in the desert, and I thank you so much for all your hard work and for sharing your discoveries with other parents. My child has a different syndrome to T21 but I am finding your work invaluable. Thank you.
Today I want to give thanks to the lady who has been a real beacon of hope to me and true inspiration after my son's t21 diagnosis. I wouldn't be quite so informed and positive without her and her blog. Just knowing that Neurodevelopmental therapy and Targeted Nutritional Intervention can transform my baby's life by counteracting the effects of the extra chromosome he has and that he doesn't just have an expected outcome according to his condition. That it can be changed and that the brain damage which is neurodegenerative can be slowed down and some of it stopped makes me so happy. I will love him no matter what and am not trying to rid him of his condition..just treat it, as you would cancer, epilepsy or any other condition. Thank you from the bottom of my heart 💜 I know you probably haven't received an award for your work but you have transformed thousands of lives...
I'm so happy that you put up this blog! My daughter doesn't have DS, but she has a neurological delay and mild hypotonia in both arms stemming from Infant Spasms(West Syndrome). She is currently 15 months old and still not walking, talking, or sitting on her own yet. She has been evaluated as being developmentally on an 8 month old level... Your blog was the first I came across with day by day success. She is progressing but at a very slow rate. I'm praying for any new progress that will help push her forward. Thanks!
Hi Andi, thank you for your great posts... We have started increasing the folinic with our nearly 8 year old son with DS, and are seeing amazing results. His moods have improved hugely, his limited speech is expanding and clarity is improving, and his behaviour is much improved too....Thank you
Your site is wonderful. I too find it frustrating when attending seminars and sessions all I get explanations of the problem but nothing on working and fixing the problem.
Your devotion, on top of your resourcefulness, is ADMIRABLE. I hope and pray that this devotion can serve as a role model for other parents!!keep going, you are doing more than great. I would also add that anyone who sees this and is as impressed as I am, that you help circulate this to others, that it may reach many parents who are in need of this great resource!!
I recently have found your blog and it is seriously rocking my world! Thank you for sharing your knowledge with me! I know you are probably VERY busy and may not have time or may not have any desire to take this on, but I have nominated you for a Liebster Award.
Hi! I've recently been told I have a couple of "soft indicators" that my unborn child is DS. I would like to do all I can to help his development, but not having %100 certainty, I am concerned that being proactive too soon could be potentially harmful if the child is not DS. Since you've written nothing else regarding your second child I'm assuming he/she was not T21. Are there any issues with taking this aggressive course of action "just in case" And lastly thanks for the information, I feel much more prepared!
Thank you so much for this post. I never really thought about it for my son, and no SLP ever brought it up, but based on your description, this is exactly what my son has and I have to get the diagnosis. And thank you for the real actionable ideas - the music CDs, the therapy styles. Great blog.
Hi andi Just saying hope things are going well...Thanks for all your help and info you have given for me to put in place with my daughter.
Andi, first, I LOVE your blog and refer friends to it and reference it myself ALL THE TIME!! THANK YOU!!! ...Thank you so much for any advice you can give!! And congrats on your new little one! I've been praying for you all!
Im a new parent of a precious and very determine lil 8mon old baby girl who has t21, and I'm so happy that ive found this website.
Dear Andi...I just wanted to thank you so much for all you have been doing, for writing these articles and posts, for your investigations. Following your route we have been seeing tremendous progress with our DS child over the last 3 months he is getting the medicines (almost 10 different names already, I suppose, though each of them helps individually and this is visible). What is known right now may be not enough to completely compensate all negative effects of DS, but the success of what you have already found is so visible that we have some hope that over the next 5-10 years the knowledge will cover also the remaining areas. Your persistence, tireless helped already so many people in different countries (I myself translated some of your information to other languages by request of other parents). Please know that what you have done, what you are doing is very important, and I am not able to find correct words to express.
i am just now reading sections of your blog. i really wish i came across all these info before my child was born. i'm 8 mos. late.but i guess better late than never...
Hi Andi, just discovered your great blog! I am a young mum to a DS baby, based in Poland. Unfortunately there is little support here in our country, no real medical programmes for DS kids, it's only parents support groups. Would you be so kind to allow me to translate this post into Polish and have it posted to one of the few DS information websites here, for other parents to read? Of course, source and you as the author would be clearly stated. Thank you in advance!
Thanks so much for this post....we found it not a moment too soon for our 10 week old with T21.
Hi Andie, thank you so much for all the time you have put into creating this website which has been a very helpful resource for me and so many others! Thanks!
I am in love with your blog. I feel it might take me a while to get through the material but thank you so much. This is fabulous!!!!
very helpful. There is so much on this blog that my daughters medical team hasn't even mentioned. I'm really looking forward to reading about and trying more things with my daughter Jaydalyn to help her thrive. I really really really am so grateful that you take the time to write this blog! Thank you so much!
I just found your website and feel like I have hit a jackpot! Thank you.
I ran out of EPO and went to order more - saw it touted as great for womens' problems and couldn't remember why I was giving it to my son. I went straight to your site and looked up this page. Thanks as usually for the super detailed information. Definitely my first go-to resource.
Andi, You are awesome! Thanks so much for the info. I find myself coming to your site all the time! It is so helpful!!!
WOW! Love your site!! Thank you sooo much for taking time to write and share all this info!
Hi Andi, Your site has been a great resource for me and my family. We have an 8 month old little girl with Ds. Her name is Hope. She is our 10th baby and we are in love. We just received her tests back for thyroid and her TSH was 4.551. Of course her pediatrician is not concerned because it falls in the normal range, but after doing quite a bit of reading concerning the importance of thyroid function, I am a little anxious. The only other symptoms that Hope has are occasional constipation. She has an odd looking belly button, but I have no idea if it's herniated. Hope does not have any other health issues. I would love to hear your recommendations as to how to follow up on this. I want to make sure that I am not missing anything. Thanks for your time and hope to hear from you soon.
I love your website! Congrats on having such a fun, easy to read, informative site!
Great post! I will be talking with my son ENT about sleep Apnea because I want my son strong, in every possible way, when the virus season starts...Thanks for all the info you shared with me about boosting my son's immune system. It has been a great help!
Andi Durkin you are OUR rockstar! Thanks for all you do and all the great info you share!!!!